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Lymphangioleiomyomatosis (LAM)

LAM is a rare disease affecting women of child-bearing age, usually in their 30s and 40s. It is a progressive disease that can affect your lungs and your breathing.

Learn About Lymphangioleiomyomatosis (LAM)

The main finding associated with LAM is the presence of "cysts" in your lungs. A cyst is a round space or "hole" with a thin border that is surrounded by normal tissue.

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Lymphangioleiomyomatosis (LAM) Symptoms, Causes and Risk Factors

LAM may have a wide array of symptoms including shortness of breath, cough and bloody phlegm. LAM is most commonly detected when a younger woman develops a "pneumothorax", where the lung "pops" and air accumulates around the lung inside the chest wall, causing the lung to collapse.

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Diagnosing and Treating Lymphangioleiomyomatosis (LAM)

LAM can affect different organs and can cause a variety of symptoms, so it is sometimes difficult to diagnose. Currently, no treatment is available to stop the growth of the cysts that occur in LAM. Most treatments for LAM are aimed at easing symptoms and preventing complications.

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Living With Lymphangioleiomyomatosis (LAM)

LAM is a chronic disease, meaning you may have symptoms or require treatment for your lifetime.

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Questions to Ask Your Doctor About Lymphangioleiomyomatosis (LAM)

Making notes before your visit, as well as taking along a trusted family member or friend, can help you through the first appointment with your doctor. Here are some questions about LAM.

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This content was developed in partnership with the CHEST Foundation, the philanthropic arm of the American College of Chest Physicians.

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