How to Support Your Loved One with Pulmonary Fibrosis | American Lung Association

This website uses cookies. By continuing you are agreeing to our privacy policy.

How to Support Your Loved One with Pulmonary Fibrosis

Older couple holding hands

It is not always clear how you can help someone with pulmonary fibrosis. It is a disease that is very stressful and a diagnosis can be difficult on family, friends and caregivers. Here are some ways you can support a loved one diagnosed with PF.

Stay Healthy

Taking care of your own health also helps keep your loved one healthy. Stay up to date on your flu and pneumonia vaccinations, try to eat right and exercise, and make sure you get enough sleep.

Learn more about taking care of yourself.

Don’t Hover

It is important that pulmonary fibrosis patients maintain a sense of independence. Resist the urge to do everything for them. Instead, talk about where you can help and where you need to step back.

Support Unconditionally

A diagnosis of pulmonary fibrosis will stir up many emotions. Patients may feel angry, depressed and anxious. It is common for patients to feel like they are losing part of their identity because they might not be able to do what they did before. It can be very reassuring to tell your loved one that you are there for them and will support them through this difficult time.

Lean on Others

Most people want to help you and your family—they just don't know how. Take advantage of the support people offer so you can get a break from caregiving. Ask people to drop off meals, assist with errands or even just spend some time with your loved one so you can enjoy some personal time. Use tools like the Lung Association's Caregiving Community to update your loved ones and organize their help.

Be Your Loved One's Eyes and Ears

Your loved one might feel too overwhelmed during doctors' appointments to ask the right questions and understand everything the doctor says. As a caregiver, your role in helping the patient stay organized is invaluable. Take good notes, ask questions and even request an appointment just for you and the doctor if there are things you'd like to discuss outside of the normal appointment time.

See more on how you can help with treatment.

Encourage Your Loved One to Seek Palliative Care

Palliative care, sometimes known as supportive care, helps patients feel their best, physically and emotionally, during treatment. It's often misunderstood as care only given at the end of life, but palliative care is recommended at the start of treatment. Help your loved one connect with palliative care so they can manage their side effects.

Think about the Future

It is important for the patient to think about what needs to happen so they can continue to get the care they need and want in the future and as their disease progresses. As a caregiver, you can help start these important conversations and assist with filling out paperwork, including an advance directive.

    Webpage Resource

    Advice for Living with Pulmonary Fibrosis

    Learn more

    Reviewed and approved by the American Lung Association Scientific and Medical Editorial Review Panel. Last reviewed January 22, 2018.

    Page Last Updated: March 13, 2018

    Sign up for updates

    Stay up to date on the latest news and information on the fight against pulmonary fibrosis.

    Red button with telephone
    Ask An Expert

    Questions about your lung health? Need help finding healthcare? Call 1-800-LUNGUSA.

    Get help
    Red button of two hand prints
    We need your generous support

    Make a difference by delivering research, education and advocacy to those impacted by lung disease.

    Button of turquoise LUNG FORCE swirl
    What is LUNG FORCE?

    LUNG FORCE unites women and their loved ones across the country to stand together in the fight against lung cancer.

    Get involved
    Join the fight for healthy lungs and healthy air.
    Donate Now.


    Breathe Easy

    Give today and your tax-deductible gift will go TWICE as far for everyone who struggles to breathe.