Find Support for Pulmonary Fibrosis | American Lung Association

This website uses cookies. By continuing you are agreeing to our privacy policy.

Find Support for Pulmonary Fibrosis

Doctor and patient looking at tablet

If you are facing pulmonary fibrosis, there are communities, groups and organizations that can help you along the way.

Pulmonary Fibrosis Support Groups

One of the most important parts of living well with pulmonary fibrosis is connecting with others in your shoes. Check out American Lung Association support groups and ask your healthcare team about PF groups in your area.

  • Online Support Communities
    The American Lung Association has online communities on for pulmonary fibrosis patients and caregivers. Individuals register to join a community. Members can choose their level of participation and engagement. This online forum is a place for members to discuss how pulmonary fibrosis is affecting them and share their life experience with peers. It is also a great place to get tips on oxygen use and living life with PF.
  • Better Breathers Club
    Better Breathers Clubs teach you ways to cope with lung disease and provide pulmonary fibrosis support from others who share in your struggles. These in-person support groups give you the tools you need to live the best quality of life you can.

Talk to an Expert

Talk to our trained lung health professionals at the American Lung Association Lung HelpLine. Our service is free and we are here to help you with your questions about PF.  Learn more.

Get Help to Stop Smoking

We're here for you every step of the way with tools, tips and support to quit smoking. Learn more.

Additional PF Resources to Assist with Treatment and Care

Resources exist that can connect you with more information and assist with your treatment. When you are looking for additional pulmonary fibrosis resources, make sure your information is coming from a trusted source such as the resources recommended below.

Local Programs

Mobility Equipment

worksheets and videos icon

Stay Organized

Stay organized with worksheets and videos in our Downloadable Resources and Video Library.

    Reviewed and approved by the American Lung Association Scientific and Medical Editorial Review Panel. Last reviewed February 5, 2018.

    Page Last Updated: July 24, 2019

    Sign up for updates

    Stay up to date on the latest news and information on the fight against pulmonary fibrosis.

    Red button with telephone
    Ask An Expert

    Questions about your lung health? Need help finding healthcare? Call 1-800-LUNGUSA.

    Get help
    Red button of two hand prints
    We need your generous support

    Make a difference by delivering research, education and advocacy to those impacted by lung disease.

    Button of turquoise LUNG FORCE swirl
    What is LUNG FORCE?

    LUNG FORCE unites women and their loved ones across the country to stand together in the fight against lung cancer.

    Get involved
    Join the fight for healthy lungs and healthy air.
    Donate Now.


    Breathe Easy

    Give today and your tax-deductible gift will go TWICE as far for everyone who struggles to breathe.